Honesty, trust, mental health and health care professionals

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Have had a less than positive experience recently with a local hospital, which is a shame because on the whole we’ve always had a lot of help at this particular hospital. And we’ve been there a lot!

But this particular problem is pretty big, and does make me nervous about going back there. Given the health problems my daughter and I have had this is not a good thing.

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Time to Talk: PTSD the hidden cost of NICU

I’ve written about the difficulties faced both during and after my daughter’s NICU/SCBU stay. It really does mess with your head in a way that you just cannot anticipate.

The Smallest Things


I saw a post last year; it simply said “PTSD – The hidden cost of having a premature baby?”

Nothing can prepare you for parenthood, but you allow yourself to imagine the arrival of your baby; those first precious holds, taking them home to meet loved ones, the time together to grow and bond – and then suddenly everything you imagined is dramatically replaced with the alien and uncertain world of neonatal intensive care.

seeing our son for the first time seeing our son for the first time

It is widely reported that parents who’ve spent time with their babies in neonatal care are a greater risk of developing anxiety or post traumatic stress disorder (PTSD). Some studies suggest that it affect as many as 70% mothers following NICU and given the nature of NICU this shouldn’t come as a surprise. Yet this is a topic that remains relatively unspoken about and more importantly there are limited, and in some areas…

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My gentle boy and my strong girl

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You are both so little still, both still under 3, and already I can see that society is valuing some of your traits over others.

This breaks my heart, because you are both so much more than stereotypes, you are incredible and complex and will only get more so as you get older. I hope that I can bring you up to not be ashamed of parts of you just because they don’t conform to gendered expectations. Nothing about you is wrong, society and it’s small boxes are wrong.

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One year on

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Today is the 24th of January, a spectacularly uninteresting day to many I imagine. For me it was the start of a traumatic experience, an experience that is still ongoing, but there is finally a light at the end of the tunnel.

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World Prematurity Day: Bonding can be hard

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Monday 17th November 2014 is World Prematurity Day, a day for talking about around 15 million babies born prematurely worldwide. My daughter is one of them, and while I was aware of premature babies prior to her birth I was most definitely ignorant to how hard it could be for the families of these tiny little miracles. I learnt the hard way, and it could have been harder still, I am very fortunate to live in a country with an amazing health service where babies like my little girl stand a good chance at life.

Around 60,000 are born in the UK, and the best charity to follow about this is Bliss, also a wonderful charity to donate to, they have been a fantastic support through some very tough times and do a lot to help families with babies in SCBU, including working with doctors and nurses to make sure care for prem babies and their families is as good as it can be. I am writing my story to share, and I advise you to follow them on @Blisscharity for more stories.

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